And I am thrilled to tell you about the fun I had on Facebook. I used all those crazy birthday wishes from people all over the country (and world) to get people thinking about kidney disease and a boy in our town.
I will start with a link to Johnathon’s story… but first a quick note on who he is and how I know him.
Sometime within the last year, his mom came to Bowman Glass and needed a windshield. When she left, I looked at Jodi and I said… “That lady has a story.” We weren’t sure what kind of story, but we knew there was something about her that was going to be important someday… and of course… I was right. We were right!
Her son, Johnathon, came along… duh.
And here is the story as told by the Bismarck Tribune…
As it turns out, Dana was just learning of all the medical info and that her son had a life-threatening illness shortly after moving to Bowman when we met her. They live in an unfamiliar town and need to figure out how to make all sorts of trips to South Dakota for doctor visits, learn how to work a dialysis machine that Johnathon uses every day for nine hours as he sleeps and does homework, and they need to figure out how to pay for this (while also missing work from time to time). Not an easy task for most families. Not an easy task in a town you just moved to.
So, for my birthday, I decided I wanted to donate a dollar for each birthday wish (one per person) on my Facebook profile. And, on the original post I would give a quarter for each like. I was getting wishes and messages of thanks and blessings from Dana’s family. I loved the fact that some friends shared the post on their pages and I was getting wishes and messages from strangers. Here is a message from one such person… and it made me think for a moment.
I saw your birthday donation thing from a friend’s post. I can’t write on your timeline, but Happy Birthday! That’s a great thing you’re doing just by bringing awareness. I had a kidney transplant 2 years ago gifted from my sister. Maybe you could ask if anyone wants to be tested to donate. It has happened before!
It made me head on over to Google and see if I could be a donor. Because I was ready in my heart to do it. Yep… surgery to remove a kidney for a kid I have only met once. But… I am not the right blood type. I can’t do it, but maybe you can. If you pray about it and find it in your heart to donate… please let me know and I will see what I can do to help you find out if you are a compatible donor.
So… Seeing all these wishes and hearing all these people telling me what a great idea this was made for a grand day. I am STILL getting birthday wishes on the street. I didn’t run and hide from my Big 40 but instead I decided to embrace the day (I LOVE MY BIRTHDAY) and do something good with it. So… the question so many have asked and I had not taken the time to figure out yet finally has an answer… How much was it?
Drum rollllllll please……..
With the wishes, the likes, and the post where Josh Duhamel showed up ($10 donation right there)…. You can make a donation there yourself if you want. Any amount helps. $5, $10, no matter the amount… it helps get the family closer to the amount of money needed to help defray costs of this surgery.
Here is the link for the COTA page… COTA stands for Children’s Organ Transplant Association… They help keep track of funds that are raised for families in situations like Johnathon.
COTA LINK – You can donate directly through this site!
Oops… the drum rollllllll continuuuuuuuuuessssss….
I will be making a donation of $247 to Johnathon’s COTA page. (I never in million years expected it to turn out like this so I will be donating over a few pay periods.)
***I do have to add a couple of notes not related to my birthday post***
Johnathon has been granted a wish by the Make-A-Wish Foundation of North Dakota… and I was lucky enough to take pics that day. Here is his wish and a shout out to my cousin Kelly (President of ND Make-A-Wish)… Thanks Kelly Braun (and Aunt Nita) for making this happen! Congrats to Johnathon on passing his permit test.
And finally… a bit of discouraging news… As a result of information in the article about Johnathon, the landlord of their apartment became disgruntled. She gave the Langston family notice that they need to find a new home. We are working on finding them a place to live at this time, but want to ask that if anyone in the Bowman, Rhame, and Scranton area have a place for rent that will accept pets… please let me know.
Thanks to everyone for the birthday wishes and keep your eyes open. We are planning the “Get the Kid a Kidney 5K Run/Walk” in our area and across the globe soon. We will be having a local event and asking our running/walking friends across the interwebs to join us in fundraising for Johnathon’s page and to raise awareness of kidney disease.