Once upon a time, I knew a girl named Keri only as an online acquaintance… Now, Keri is my friend, and her brother is my hero.
I met Keri Doolittle as part of an online photography group gathering when Sophia was just a baby. It was September (my birthday weekend) and an amazing weekend is an understatement to say the least. While I learned much and met new friends, the most important thing that happened to me that weekend was learning about a guy named Steve. Keri’s step-brother is Steve Gleason, #37 for the Superbowl Champion New Orleans Saints in 2009. While that may be just a small factoid in the sports world to some, what is more important is Steve Gleason is fighting against a relentless disease, amyotrophic lateral sclerosis (ALS) and doing all he can to make sure others who are touched by this terrible disease can do it with the technological advances they need, seeking a cure, spreading awareness and the coolest of all things… raising his son, Rivers and living out his life with his wife, Michel.
Great story Robin… get to the point…
Each year since meeting Keri, I have participated in at least one event to raise awareness and funds to help Team Gleason. One year I went to a golf tournament, and years following I have participated in an event called the Team Gleason Virtual Race. This year, the race name has changed to Team Gleason Virtual CHALLENGE. What does that mean? Well, not everyone is a runner or walker. The main idea is to get people out MOVING… DOING… ACTIVE… because one thing ALS takes from so many is the ability to MOVE, DO, and be ACTIVE without the assistance of others.
How can you be involved? Well… there will be a LOCAL gathering in Bowman, ND at James’ Field around the walking path and at the baseball field so people can do whatever activity they wish!
Below is a screenshot of the website telling about the event. And… showing Jodi, Amanda, and Aunt Tonya from a previous year. They have supported Team Gleason each year and I love them all for it!
I have decided to be a local volunteer and am putting the local event together for Southwest ND area. I am super excited and hope everyone spreads the word and decides to come hang out and have some fun as a community in support of Team Gleason.
Even I made the website… here I am!
Here is more information about the event. I am so excited to be able to add other activities!
I will be posting and sharing more about the event here on my blog and on Facebook.
Go to www.teamgleasonvirtualrace.com for more information and to REGISTER!!!